Durably Disordered

In June of 2015 my daughter (the younger of my twins) was eleven years old.  We were camping and had just come back from a difficult visit to the camp store.  Stuff happened.  I was irritated by the onlookers and wrote the following on Facebook:

“My daughter suffers from selective mutism, social anxiety, learning delays, and unidentified behavioural disorders.  I stood beside her in the public camp parking lot as she lay on the pavement and loudly invited anyone to run her over … Because her mother doesn’t care.  ‘We’ don’t love her or want anything good for her.  ‘We’ are the worst parents. 
She proceeded to punch me until I couldn’t breathe.
You all saw it.
Don’t judge her. Don’t take it personally when she won’t look at you or talk to you.
This is a very real mentally disordered reaction to not getting the toy she wanted from the store and simply from being around strangers.  Your eyes on her make her anxious, and she assumes you want something from her.  Many things set her off.  Sometimes, she chooses fright, freeze, or flee.  This time, she chose to fight.  It happens often.  It’s devastating.  If you encounter us again, please give us the space to deal with it.  Prayers and love are welcome.
Don’t tell us how to parent.  Reserve judgment.  We are doing the best we can to do right by her.  Awareness is Everything.”

I received a lot of sympathy posts.  It just made me angry with myself for trying to protect my image of proper parenting.  Nobody needed an explanation.  My own personality disorder switched on and made me fight, too.   

I don’t know what it is like to be my daughter.  She, however, identifies with me.  She sees me get flustered, sweaty, angry, and popping pills.  We normalize each other’s behaviour.  It’s a daily struggle for everyone who lives with us. The pressures of life weigh heavily upon anyone who is mentally ill or somehow neurodiverse as well as for caregivers.  Mental illness is common, but my daughter says she often feels strange and alienated. Some days she feels like she should never have been born. Other days are tolerable. Once in a while, she has a happy day. We celebrate those moments. 

She began medication for anxiety, depression, and selective mutism when she was nine.  It was a hard decision.  I loved her spunk, bounciness, brightness, creativity, and  joie de vivre.  We were terrified that we would lose those beautiful parts of her personality.  It did change her.  I can only describe it as a kind of numbing.   Her intense emotions were replaced with a void of unfeeling. Her expressive body movements and her voice became less marked.  As the years wore on, we added Autism Spectrum Disorder to her greatest hits list.  Looking back, it all makes sense.  Cradle to nineteen – she has quirks that make her as unique as she is complicated.  She is a fabulous artist and extremely knowledgeable about insects, animals, and the natural world.  

I’m writing this after a couple of hours with the Newfoundland ponies that my friend at Poppy’s Haven so generously allows my twins and I to interact with.  Today my daughter wasn’t feeling her best.  Whenever she overextends her effort to be social, she manifests physical symptoms.

Oh, but the smiles!  Oh, but the sound of her voice!  Oh, but the delight she took in caressing, grooming, and whispering to the ponies!  It was so great for both girls.  Combined, the three of us are a walking ball of tension and anxiety.  Not today though, nope.  We even visited with my friend’s Newfoundland dog.  What a beauty.  He sparked much conversation.  

Today I caught a glimmer of the brightness I rarely see since starting my daughter’s meds.  We are so blessed to have a safe place for her to enjoy and practice being herself.  I am forever grateful.

Please. Help us normalize mental health.  Talk about it and fight against the stigma.

4 thoughts on “Durably Disordered

  1. Linda Bluhm's avatar Linda Bluhm says:

    Coping with her complexity must be exhausting for both of you and your family. Keep reminding yourself she is a gift from God, and so are you.

    Liked by 1 person

  2. I watched a friend and her husband welcome a beautiful baby boy into the world, only to watch them agonize as he disappeared into himself before his 2nd birthday…I had no answers, I could only love them and pray…he is such an amazing young man today…stand firm sister…God sees you and holds you… I can love you, and I can pray 🙏…

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